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NHS England set to share medical records with outside third parties!

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#1 [Permalink] Posted on 3rd June 2021 23:46
Seems that many are not fully aware...

You have until June 23rd 2021 to opt out

NHS England set to share medical records with outside third parties!

metro.co.uk/2021/05/27/nhs-england-set-to-share-medical-r...

If you live in England, you have until June 23 to opt out of your data being included in a ‘digital scrape’ by the NHS, which it will share with third parties.

Privacy campaigners have harshly criticised the plans of NHS Digital, which will see the medical histories of more than 55 million patients ported into a database, including mental and sexual health data, criminal records and more sensitive information.

The records will be scraped from every patient in England registered to a GP clinic by NHS Digital, which runs the country’s healthcare IT systems.

The data will reportedly be available to both academic and commercial third parties for research and planning purposes. Though NHS Digital publishes a monthly list of who it shares its data with, campaigners have said it will be difficult to find out who ultimately sees the data, due to the NHS’ ‘opaque’ commercial relationships.

While the data will supposedly be anonymised, the NHS will hold secret ‘codes’ to unlock the identity of the data’s owners if there is a ‘valid legal reason’. Privacy campaigners have said the overall plans are ‘legally problematic’ and that not enough time has been given to patients to opt out of the plan.


Digital rights campaign group Foxglove has issued a letter to the Department of Health and Social Care which questions the legality of the move.

‘Very few members of the public will be aware that the new processing is imminent, directly affecting their personal medical data,’ wrote solicitor Rosa Curling in the letter.

If patients fail to opt out by June 23, which can only be done by filling out a form and taking it to your GP, their medical records will become a permanent feature of the NHS Digital data set. If you miss the deadline, and opt out after the deadline, you can only stop future data from being included in the system.


The plan was first announced by health secretary Matt Hancock at the beginning of April, through a series of blog posts on the NHS Digital website and flyers at GP surgeries, but critics have said the publicity hasn’t been sufficient.

Advocacy group MedConfidential, who has sought to raise the alarm about the impending deadline, told the FT: ‘They’re trying to sneak it out, they are giving you six weeks nominally and if you do not act based on web pages on the NHS digital site and some YouTube videos and a few tweets, your entire GP history could have been scraped, never to be deleted.’



Opt-Out Online
your-data-matters.service.nhs.uk
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#2 [Permalink] Posted on 4th June 2021 11:36
Where can the form be found which needs to be filled and handed to the GP?
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#3 [Permalink] Posted on 4th June 2021 14:02
ummi taalib wrote:
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If you are asking about opting out, then it's the last link in the op.

You'll need the full name, d.o.b. and preferably the nhs number.
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#4 [Permalink] Posted on 4th June 2021 16:30
abu mohammed wrote:
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done that...i didnt realise it was sufficient
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#5 [Permalink] Posted on 5th June 2021 00:05
ummi taalib wrote:
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I would recommend you confirm with your GP anyway.

GP's are overwhelmed with such requests are the moment. One more call won't hurt them ;)

From what I know, people are completing the form online as above and also contacting their Practice.
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#6 [Permalink] Posted on 8th June 2021 20:09
www.bbc.co.uk/news/uk-politics-57400902.amp#aoh=162317927...

New NHS patient data store delayed by two months

The creation of a central NHS digital database from GP records in England will be delayed by two months, the government has announced.

The system was due to begin on 1 July, but the date has now been pushed back to 1 September.

The NHS had been calling for a delay to allow patients more time to learn about the system.

The British Medical Association and the Royal College of GPs had also expressed concern
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