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What is Autism?

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#1 [Permalink] Posted on 11th March 2014 12:49
What is Autism, are you on the spectrum?

There are many people on the Autism spectrum who have gone undiagnosed, this thread is to give awareness of autism.

Many children grow into adulthood unable to relate or understand the social and environmental factors that surround them, making them feel alienated and isolated, many going into depression, sufferring mental health issues, developing Ocd and anxiety related illnesses.

For an adult to understand what autism is and where they are on the spectrum is vital. It is not only essential for the person, but the awareness is vital for carers, parents, close and extended family.

How do people with autism see the world?

People with autism have said that the world, to them, is a mass of people, places and events which they struggle to make sense of, which can cause them considerable anxiety.

In particular, understanding and relating to other people, and taking part in everyday family and social life may be harder for them. Other people appear to know, intuitively, how to communicate and interact with each other, and some people with autism may wonder why they are 'different'.
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#2 [Permalink] Posted on 11th March 2014 12:52
About Autism?

Autism is a lifelong developmental disability. It is part of the autism spectrum and is sometimes referred to as an autism spectrum disorder, or an ASD. The word 'spectrum' is used because, while all people with autism share three main areas of difficulty, their condition will affect them in very different ways. Some are able to live relatively 'everyday' lives; others will require a lifetime of specialist support.

The three main areas of difficulty which all people with autism share are sometimes known as the 'triad of impairments'. They are:

Difficulty with social communication

Difficulty with social interaction

Difficulty with social imagination.

It can be hard to create awareness of autism as people with the condition do not 'look' disabled: parents of children with autism often say that other people simply think their child is naughty; while adults find that they are misunderstood.
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#3 [Permalink] Posted on 11th March 2014 13:41

The biggest problem with having Autistic Children is the toll it takes on Parents.

  1. Relatives have no understanding of why the child is like that
  2. Muslim freinds have no understanding of why the child is like that
  3. Local Mosques have no understanding of why the child is like that
  4. Islamic Schools have no understanding of why the child is like that
  5. If you go and attend talks, Ulamah have no understanding of why the child is like that
  6. If you are Bay't to a Shaykh they have no understanding of why the child is like that and how/why it affects your Tassawuff. Special needs family members really hurt the spirituality of a person unless you have SUPREME Eeemaan and reliance upon Allah (SWT).
  7. The "Non-Muslims" on the other hand have a very clear picture on what it is and how to deal with it.

Example is a relative of mine who organised a Junaid Jamshaid Nasheed session in Ramadhan. Both husband/wife worked extremely hard to make it happen and raise money for their local Mosque. In the middle of the Nasheed, their child (who couldn't be dropped off) anywhere screamed so Junaid Jamshaid on the MIC went ballistic and gave a lecture on how to control children. What he couldn't udnerstand is that the boy is 12 years old and if he is behaving like this "It isn't normal"!

Sunnah following Muslims humiliated in front of the whole community because of having no understanding of the issue.

A vast majority of Autistic children grow out of it (to a large extent) and live a relatively normal life but because these children and families are SHUT OUT of the Mosques, Islamic talks etc the behavior is never learned. I was in a Bayan and a brother has a 9 year Autistic child and a Shaykh (of Tassawuff) after Bayan asked him to switch the lights off, the chld just froze, Shaykh asked again the child did nothing so he asked the 3rd time and at this time I switched the light off.

Shaykh just said, "Kiya Haay Yey Bacha, Itni Si Baat nahi Samjhtaa" (What is this child, he doesn't understand this simple command?"

In fact the Muslim Parents go out of their way to hide themselves and their children. This is 19th century behavior of British Royal family who went out of their way to hide Autistic children from public life.

I work with Muslim families and special needs children so we certainly have a problem!

As I said many children (and adults) do recover and live a fairly normal life...

The other problem is people chasing Aaamils and Ruqyaas when Autistim is Neurological disorder and nothing to do with Jinns/Magic!

In Tassawuff terms the son of Syed Ahmed Shaheed (RA) was most likely Autistic although labelled in history books as "Born Majzoob who never recovered"

The daughter of General Ziaul-Haq (RA) of Pakistan (Zain Zia) is Austic whom he dressed in male Army uniform and took her with him everywhere.

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#4 [Permalink] Posted on 11th March 2014 13:56
Muadh_Khan wrote:
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Totally agree and can relate to your post, sadly most people relate special needs to the effects jinns/sihr.

You are correct, with understanding from within and the outer circle anyone with autism can live a normal life.

Came across a documentary on a tribe in some rural part of America, the whole tribe was autistic, it was amazing, they had order, they never hurt each other's feelings, from the youngest to the the eldest in the tribe, each person was autistic, and innocent of traits that would normally cause hurt to each other.
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#5 [Permalink] Posted on 11th March 2014 14:00

Taalibah wrote:
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I was taking a whole bunch of boys for Salah and walking downstairs. A mildly Autistic boy who has trouble walking, rest of the kids ran off but another Autistic boy (suspected) stopped, held his hand and walked him down to the Musallah.

I spoke to the child's mother and said, "Your son just did that" and she said, "Yes he is kind of like that".

It was very clear what he was doing but the mother didn't get it!

This other boy has specturm symptoms but his humanity shows in his Autism.

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#6 [Permalink] Posted on 11th March 2014 14:02
The biggest issue is getting rulings, because rulings that normally apply to the mass general do not apply to autistic people due to their way of thinking and understanding.

This is one of the weakest and most ignored part of Deen in society. Even after much explanation and authentic information spread about autism, unfortunately it is not accepted or even acknowledged.
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#7 [Permalink] Posted on 11th March 2014 14:07
Muadh_Khan wrote:
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Autistic kids/adults, Wallahi they are the most innocent, kindness, and genuine people you will ever meet.

It's just very sad that although autism diagnosis is fairly easy now, it wasnt recognized before, many adults on the spectrum are suffering in silence due to lack of recognition, no body understands them, they don't understand themselves.
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#8 [Permalink] Posted on 11th March 2014 14:17

What is concerning to me is a lot of Adults who may have Autism or Asperger Syndrome and they have never been diagnosed or understood. And the classic hotbed is Internet Forums because those suffering from these disorders have problems with forming emotional bonds and relationships and forums give them the distance which they need.

I am a classic example of someone who is either emotionally charged or emotionally detached and a brother from India is just saying that on gmail chat as to what is wrong with me. :P  I have trouble forming emotional bonds and emotional relationships and it manifests itself particularly in my spirituality which is based on emotional longings and feelings.  I have been declared UNFIT for TASSAWUFF and although I have never been diagnosed I could be on the spectrum because I do have the uncanny ability to attach or detach but not be stable.  All my life nobody has ever understood that until I began to analyse my own personality and its shortcomings.

Only one person on a 10,000 User forum like Sunniforum figured this out and emailed me which is pretty phenomenal actually and I was told, “Banning you wasn’t the solution because I could feel your spirituality and you are neither mischievous, nor stupid, nor trouble maker, just misunderstood and nobody understood why you behave the way you behave” 

My Shaykh also told me something on similar lines as to what I needed to do to progress in Tassawuff and he said, "I know more about you then you know about yourself".

So there are random people who understand things, pick up patterns etc. but that's a minority.

 

 

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#9 [Permalink] Posted on 11th March 2014 14:31
I've had conversations with autistic people via text or email, but due to their inability to express this physically, when meeting them it's like speaking to another person, one in writing the other in physical form.

Bit like communication with the person inside and a different approach from the outside. Its difficult to realize autism via text, as this is the inner part of the person that is able to express themselves, but it can be pick it up within a few seconds of meeting someone.

sometimes normal conversation via text can come across as rude or harsh, in fact this is an autistic person just being honest but not knowing how to express it in a manner that would be accepted as being 'nice' because autistic people don't understand the fluffy bits, you know like trying to say things that might not be taken as being impolite.

That's why a diagnosis is important.
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#10 [Permalink] Posted on 11th March 2014 14:38

Taalibah wrote:
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Most of the times Autistic people are not diagnosed or can't be diagnosed or its inconclusive. I watched a Hindu Ayurveda video once on Autism and the guy said that there is no treatment in Ayurveda for it because the expectation that everybody should behave the same way is unrealistic and not known throughout mankind. People behave differently and that's life.

Similarly there is also no treatment in Islamic medicine or Western Medicine.  It is expected that certain people have quirks in their personalities and they are just expected to behave in this manner.

Read books of history and notice that odd behavior of people (Muslims and Non-Muslims) so what is important is for people to observe behavior patterns and recognise differences.

People need to be understood more then diagnosed because even after diagnosis how will you treat them???

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#11 [Permalink] Posted on 11th March 2014 14:53
Muadh_Khan wrote:
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Diagnosis lets you know what you are feeling or not feeling, compared to other people is normal. I would say autism is not a disease which needs curing, but needs acknowledging and embracing.

A diagnosis lets a person know how and why they think differently, so they don't sink into depression thinking they are suffering from a mental health disorder....a person can understand themselves, regardless of how and what other people say and think, because at the end of the day we live in a place where people can say the most hurtful and cruelest things, as long as the person knows the reason for there own way of thinking they will care less and less about other people's opinions.

Did you know Einstein, bill gates, temple grandin and many more successful people were on the autism spectrum....it's far from being a disability, it's a very unique ability if nurtured can take a person into success both in this world and the next.

For an autistic person its firstly more important to understand themselves than to have the understanding of others.

Lack of diagnosis can lead to depression, Ocd, anxiety disorders etc.
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#12 [Permalink] Posted on 11th March 2014 14:57
It is only recently that professionals have realized the importance for diagnosis, regardless of age, hence this has been made easy for anyone who requires a diagnosis, gp being first place of call for a referral for diagnosis.
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#13 [Permalink] Posted on 11th March 2014 15:03
How Autism effects the brain....



Autism is a developmental disorder that can cause problems with social interaction, language skills and physical behaviour. People with autism may also be more sensitive to everyday sensory information.

To people with the condition the world can appear chaotic with no clear boundaries, order or meaning.

The disorder varies from mild to so severe that a person may be almost unable to communicate and need round-the-clock care.

Research has revealed that people with autism have brains that function in a number of different ways to those without the condition.

One recent study suggested that people with autism tend to have far more activity in the part of the brain called the amygdala when looking at other people's faces. The over-stimulation of this part of the brain that deals with new information may explain why people with autism often have difficulty maintaining eye-contact.

Specific nerve cells in the brain, called neurones, also act differently in people with autism. Mirror neurones help us mimic useful behaviour so we can learn from others.

Brain imaging studies suggest that the mirror neurones in people with autism respond in a different way to those without the disorder.

This could partly explain what many behavioural studies have already shown - that children with autism can find it difficult to copy or learn simple behaviours from others. Scientists have suggested with social interaction could have a knock-on effect on language learning.
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#14 [Permalink] Posted on 11th March 2014 17:46
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#15 [Permalink] Posted on 11th March 2014 21:10
Muadh khan wrote:
I have been declared UNFIT for TASSAWUFF


How strange.. as if Tasawwuf was about flying the Lockheed blackbird..
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